Parents start foundation to find cure for son's genetic disorder
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Lucy has a rare genetic disorder. Two doctors are leading the desperate hunt for a cure: her parents
Now You Can Genetically Test Your Child For Disease Risks. Should You?, Science
The Wilderness of Rare Genetic Diseases and the Parents Navigating It - The New York Times
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Parents of Boy with Brain Disorder Raise Money for Gene Therapy Clinical Trial
A Father's Search to Find a Cure for a Rare Disease: GRIN
Our Team - CureGRIN Foundation
Fighting for My Son With Cystic Fibrosis
Parents start foundation to find cure for son's genetic disorder
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Az. Parents Seek Treatment for 2 Daughters with Fatal Brain Disease
Researching Snyder-Robinson Syndrome - CZI Blog
A Fierce Mother vs. a Fatal Mutation
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Parents of Boy with Brain Disorder Raise Money for Gene Therapy Clinical Trial
First Genetic Risk Factors Identified for Sudden Unexplained Death in Children After Age 1
Parents hoped an existing drug might treat their kids' rare disease - STAT
